Almost all fibroteam member seem to talk about having different additional health problems coming along with their fibromyalgia "comorbid with fibromyalgia", such as irritable bowel syndrome, chronic fatigue syndrome, tension or migraine headaches, temporomandibular disorder, and major depressive disorder (MDD), anxiety disorder, sleep disorder, hypothyroidism and chronic autoimmune diseases such as rheumatoid arthritis and systemic lupus erythematosus, diabetes, ankylosing spondylitis etc
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@A MyFibroTeam Member our stories are so similar. Starting June of last year it felt like I could never get out of fight or flight mode. I would wake up and barely catch my breath bc of anxiety. Had NO idea why it was coming on. Spent one day with a total rash on my face from such high anxiety. I didnt realize at the time but I was drinking at least 3 glasses if wine every night to calm myself down. Couldnt handle large crowds, didnt want to deal with holodays. It was like every little thing set me into overdrive. Now it seems my brain is “tricked” and even being relaxed and no longer anxious the way I was before, it’s like I cant climb out of this hole. Like , my brain is permanently stuck.
Last summer I saw on my local news that MassachusettsGeneral Hospital in Boston was going to start human trials into a possible cure for fibro. The news went on to say that the researchers believed that fibro was genetic and could be found with a blood test. When I looked into this months later, I found out that the researchers had been using an old vaccine for Epstien Barr virus along with something else for the cure. The blood testing became part of a registry that patients could contact seperatly. Beyond this, I don't know much except that testing of new drugs usually takes awhile. I dont know any results.
I have one theory: that people who are genetically predisposed to getting fibro and also contract Epstien Barr are more likely to contract fibro following a physical or mental trauma to the body. This fits my life scenario, but I developed bipolar depression very soon before I was diagnosed with fibromyalgia. Then the other illnesses came along later.
@A MyFibroTeam Member, I also got autoimmune thyroiditis. I got mine after Fibro, first had Epstein Barr twice, once in my senior year in high school, and again a few years later after being married, then Fibromyalgia, plus several years of sexual abuse from ages 5-10yrs old, lots of emotional abuse, verbal abuse, screaming mother all the time, calling me stupid, idiot and told me I'd never amount to anything. Alcoholic parents, and husband, financial stress and husband having affairs. Learned at a very young age that you can't trust anybody and that the world is an extremely scary place where there is no safety. So, I do think that fibro comes from the wearing down of the adrenal glands and the whole body when you live under constant stress. Seems to be the constant variable with all of us pain pals! So sad! Didn't need to be this way.
I think mine was triggered by a thyroid problem & stress. I felt fatigued for about 4 years before diagnosis. Thyroid tests came back borderline & it wasnt until later it was found i had antibodies that knocked my thyroxine out so basically little throxine which controls your whole body. My mum was diagnosed in her 70's & my niece in her early 20's. So maybe a genetic connection? Xx
Hi. I have many problems as you have noticed most people with fibromyalgia do. I started it in my 20's after a bad shock - lost my son of two weeks old. My only son got fibromyalgia also in his 20's after a bad shock. He was mugged - his skull fractured, leg broken and comatose for awhile. My theory is that shock of some sort brings it on. If we were maybe more careful or saw a psychologist afterwards maybe it could be prevented? I don't know. I often think about it as mother then son. Maybe it is just a genetic thing relating to a bad stress.....???