Is Your Experience Of Fibro Progressive? | MyFibroTeam

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Is Your Experience Of Fibro Progressive?
A MyFibroTeam Member asked a question 💭

I find that each year I have more physical crises and less function. This year it is the interaction of post surgery malfunction kicking off the Fibro. Been mostly out of commission for 3 months and now must use a cane for balance. What have you experienced over time? Does your body vet worse and lose function??

posted May 5, 2018
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A MyFibroTeam Member

Yeh, i think its a steady degeneration and it seems in my personal experience comes in waves, you adjust and live to your limitations and when you do it seems to get worse. You eat healthily and you start to have problems with food you never had before, you lightly exercise and your joints become arthritic and sore and the fatigue gets worse, because you dont do as much so you read then memory and eye problems appear. Its a never ending cycle, hyper sensitivity, fantom pain, and so on and its endless. And it gets worse as time goes on. I think anybody who says they had fibro and are now cured are liars or they never had fibro but had something else.

posted May 5, 2018
A MyFibroTeam Member

Yes too much stress makes it worse by putting you into a constant flare-up.

posted May 5, 2018
A MyFibroTeam Member

I use a stick after a year in hospital a good few year back was in Edinburgh western with brain stem stroke Then months later back to Victoria hospital Then back to sir George sharp brain injury unit to try get out wheel chair I did Then had a zimmer Now I have a stick and can talk walk ect But with the Fybro attacking what I call my good side lower left hand side I let out a scream How embarrising Uf my carers just Going to local shop as afraid out myself now as I lose grip of stick because of the Fybro pain Its like at hop but not sure As all body's in pain the nerve pain I can try best but with rain winter Grrr if had knife I'd cut my right side off those three gapentim 3times a day are rubbish Sorry I Allways right a BOOK LOL WHEN REPLY DONT MEAN TOO SORRY XX TOO ALL

posted May 7, 2018
A MyFibroTeam Member

My fibromyalgia has gotten worse and worse over the years. At this point I believe that being bedridden will be the next step. I actually have approx 20 diagnosis that all fit into the fibro symptoms. I take 8pills in am, 4 during the day, 5 at bedtime. The list doesn’t even include all the Tylenol @ ibuprofen 24 hrs a day. I also use Arnica gel, roll-on biofreeze and lidocaine pain patches. My fibro pain is never gone even for short time periods and getting worse. My pain level is approx 9-10 on a scale almost consistently. I am angry about these issues, because I am very stubborn, independent, single @ now caring for my mom on small ways & $$. My moms needs are increasing quickly this past year. I just want to do what makes me happy and my favorite (flower gardening). I may not have a life outside of my home, but Thisvis miserable & increases my depression by at least 10 times. I actually was laying down next to the garden yesterday when I could no longer bend, stoop, sit-up Etc. Not an advantageous position with spiders all around! EWwwwwww🕷I believe that “stress” is a large contributor to my fibro.

posted May 5, 2018
A MyFibroTeam Member

Yes i did the google check i have’nt before even though i had had fibro for over six years. And yes they hit the nail on the head in the stages, what i found interesting is the link to leukemia i need to research that finding while i couch surf recovering.

posted May 8, 2018

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