Connect with others who understand.

sign up log in
About MyFibroTeam
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Sjorgans Syndrome

Sjorgans Syndrome

Hi i was diagnosed with fibro , but for the last 4 months i have been getting terrible burning eyes and dry mouth and sometimes swallowing is hard to do my tongue swells and my moth and lips burn also and my jaw ans neck feels swollen and hurts does anyone know if this sounds like sjorgans thsnk u xxx hope all are having a pain free as possible day xxx

A MyFibroTeam Member said:

Are you on new meds? Or any meds at all even If you've been on them for awhile. If so, the swollen tongue and burning could be an allergic reaction. Check with your doctor or phamacist. The dry eyes and mouth can also be from meds. I drink water constantly because of dry mouth. Use tears eye drops to help your eyes be more comfortable. Fibro does have a lot of weird symptoms and we all seem to be finding new ones every day. I hope you start feeling better and please check with someone about the swelling. I've had many allergic reactions and they can be dangerous. Good luck. Hugs

posted over 2 years ago
A MyFibroTeam Member said:

i was told for FOREVER, even before fibro i had Sjogrens. i have Meibomian gland disfunction (i don't produce the oils that protect my eyes) and anything that comes out of my tear ducts feels like sand is being thrown in my eyeballs. my salivary glands...have been swelling since i was 4. i'm 32 now and just got them test, NEGATIVE for Sjogrens!!! wtf! so now we don't know what else i have. Good luck to you

posted over 2 years ago
A MyFibroTeam Member said:

Salmon oil fixes mine.

posted over 2 years ago
A MyFibroTeam Member said:

Hi I also have burning itchy sore eyes and dry mouth. I use Restasis for dry eyes and Biotine for dry mouth, some days it helps and other days it doesn't. Does anyone have sore ears? There are nights that my ears get so sore that I cannot sleep or lay on either side because of the sore aching pain on the outside of each ear. Hope all of you have a blessed day.

posted over 2 years ago
A MyFibroTeam Member said:

Could it be your meds drying everything out? My GP was querying Sjogrens, med change.... mostly gone.

posted over 2 years ago
Browse more questions and answers
Continue with Facebook
Sign up with your email
Already a Member? Log in