Thanks Monica.
Anyone else have 3 fingers warm and the pinky and neighboring finger ice cold? Happens on both hands
My hands and feet gets so cold I wear gloves most of the time. I live in California no snow close to me.
I have seen a few doctors here who haven't been terribly helpful.
I am starting to work with the 3rd MD soon & will be seeing my Neurologist soon & Dermatologist to figure out s
There is a shortage of doctor's in general let alone ones who specialize in fibro. Do u know about Portland?
I have discovered that energy management is key to being able to live with Fibro. I read so much more and have learned many new things. I try hard to give back by sharing what I’ve learned so other can benefit.
I try to do the same, share my experiences and what helped. Fatigue, pain & sleeplessness make it hard to survive and make it through each day. I've found that I'm stronger than I ever thought I'd… read more
I cannot sleep tonight because of the pain in my left knee especially. This is a new pain which has only started happening in the past 2 weeks.
I am taking co-dydramol for pain but its not helping with this pain. Does anyone else have any recommendations?
Lol, too many typos!! 😬
I was told 2 days ago that I have Fibro by a rhumatologist. My issue is that they looked a questionaire I filled in and went off of that. I walked into the room and was told "ypu fit the classic profile of someome with fibromyalgia, we're not going to do any bloods/scans/xrays because they would just come back normal." My issue with this is, what if its one of the many other conditions that have similar symptoms? I've had no tests done by my GP prior to this either. Has anyone else had this… read more
That's the way it was for me. The rheumatologist literally looked at all the tests that 4 or 5 specialists had all done, announced that I had fibromyalgia and then informed me that he doesn't treat… read more
My husband and I are starting the IVF process and I want to know if I can pass fibromyalgia on to my kids? and if I do become pregnant will my fibromyalgia get worse?
I agree, find another rheumatologist! They’re the ones who know all about this disease. Are you sure he’s not an MD? ❣️
Has anyone started a support group and if so how did you go about getting it started? What did you do at these groups and how do you keep your group from becoming a group of misery? I would like to start one in my area
>Penny: just incase, as my daughter is still here, 😬 does bible study start again tomorrow? Thanks!
You are right when you say "I know that "fibromyalgia" is just a label that doctors give to patients that they cannot or do not want to help". What you missed is that there is a real condition of Fibromyalgia except practically no one gets it right not even doctors. I've heard said there are 200 symptoms of Fibromyalgia and sure once you have a word that names something that you can't diagnose, that word can be used as an answer for a plethora of those ailments that there are no definitive tests… read more
I am definitely willing to listen and would like you to explain how it can be cured please. I would greatly appreciate it
I found a question and answer on Google that just doesn't make sense to me. First I read that it may be different in different people,, meaning (?} that it could be autoimmune. Then it says Fibro is not autoimmune, which I thought it is. So, here's Google's answer.
Is fibromyalgia autoimmune or neurological?
They may be different in different people. Current research suggests involvement of the nervous system, particularly the central nervous system (brain and spinal cord). Fibromyalgia is… read more
From what I understand it is not autoimmune. It is neurological and muscular. But, I am no expert.