I am so sorry your daughter and you have it. She is too young to have to deal with this. At least you both have someone that knows what the other one. Is going thru. I would see what a pediatric rhematologist or neurologist says to do for her. Maybe if she starts doing physical therapy and mild stretching exercises it will keep it from getting worse. Have you tried a chiropractor for either of you? That might help too. I would try to keep her off prescription pain meds and try the natural route first. I take several anti inflamatory supplements that have helped me. Turmeric, garlic, co q 10, oil of oregano and a good probiotic like acidophulos. If she can keep the inflamation down and not get leaky gut (which most fibro patience have) that will hopefully help her. Good luck and i hope this helps.

Have you checked your daughters thyroid? My 11 year old has autoimmune thyroiditis and her symptoms were very similar to my fibro

Sadiyya they didn't check that. I'm actually getting a referral to a new pediatric rheumatologist because I was quite angry when I left the last one. He did no blood work and dismissed it as fibro and said keep doing what you're doing. Well, 3 days of school have been missed a month and a half into the year obviously what we're doing isn't working. I can't stand seeing my daughter laying on the floor crying because it hurts to move or having to help her walk to the bathroom. I feel so helpless.

Me and twin and me m all have it and we can’t seem to get help and we need advice also!

This is only a suggestion, so I understand if you choose not to go with it. When I was 13 and in middle school I developed what seemed like a never ending migraine that would cause me to pass out. One time passing out at school, and that was it the school no longer wanted me there because I was a "liability." You see if I would have hit my head and been injured, my parents technically although they never would but could sue the school. The other problem we ran into was I was missing too much school between the er and the 50 million specialists I was seeing. Well, my mom didn't feel she would be able to home school me, doubting her own education and my dad was at work supporting us. That left cyber charter school. As long as it's a charter, it's similar to public and that it's free. At the end of all this, the doctors found I had clinical migraines, because my parents and I couldn't figure that out for ourselves without spending thousands of dollars apparently and the migraine seemed to turn to migraines(plural) and at least scattered out a bit. They still plague me to this day but it was enough so that I began to excel in my classes and for once since we moved to this northern hell I actually liked school and my teachers. I moved from a very large school with educated teachers as well as peers, and yet I was a southerner, move here and I'm in redneck hell with a town not large enough for more than one traffic light and teachers who haven't left that town let alone the state with peers who are exactly the same in a class no larger than 70 kids. I had an English teacher who actually expected you to read the book he assigned, understand it and write an educated essay on it. 10 pages for every 5-6 chapters. Math teachers that actually explained it when you didn't understand the problem and you didn't have to take an ap math to take calculus. History teachers who actually got you interested in history, brought in culture religion love and politics so we could fully understand why certain decisions were made. So I personally fully advocate for cyber schools. They have virtual classrooms where she'd have a microphone and an icon with a hand to raise her hand, live teachers on the other end and their blackboard looked similar to the "art" feature on our computers. Or she can go at it self paced with a book and list of assignments and the year gets split into "semesters" basically same time frame and fall stuff has to be in end of fall and spring stuff end of spring