Emotional upsets. I think that a really bad situation a few years ago sent me into a flare that led to my diagnosis. I dont take anything for pain anymore since i take effexor for anxiety and depression, and the other medications were putting me at risk for serotonin syndrome. No more tramadol or gabapentin since i was admitted to the hospital dor a complete cardiac workup. If i could get the fatigue under control i could find some joy im lofe again. I cant sleep well at night and i am too tired most days to do even the things i used to love to do. I feel like this disease is a thief. Id like to find some natural remedies because i am wary of trying any new meds.
Cold days are bad days. Cold damp days are hell. Stress definitely irritates. Not getting a good night's sleep is another sure sign you'll have a flare up the next day. Drinking the night before. Alcohol is not your friend. High sugar or high carb diets are HORRIBLE. Light exercise, which yes, I know hurts to think about let alone do, and a healthy diet are lifesavers. At least for me.
Things are tough with this illness. Others feel it is mind over matter but that is easier said than done. Prayer gets me through but it is still difficult. Having a loving family and friends that will always support you is wonderful. I know getting ready for the day is extremely difficult because the depression tries to hold one down. Let's all prayer for one another each day for ease if pain and functionality. Prayers to you all. It is a relief to know one is not crazy in the head as some people assume we are acting or over exaggerating. Each day comes with different challenges. We all have to hang in there as best we can for our oen mental health. Do what you can when you can and as long as you know you made the effort you should feel good. Prayers to all.
Hi I don't actually know what flares mine up as it could be stress or cold etc the list is endless I just know when I walk it hurts so choose not to, I clean my house or try then just can't be bothered , I get emotional and not sure why I struggle with sleep also so it could be numerous things that set it off I know my good n bad days but my main problem is my legs constantly feel like my bones will snap and are so sore not as much to touch but inside if that makes sense .
Have any of you tried aqua therapy?
I THINK it helps but it's hard to tell right now bc I'm recovering from lower back surgery. Having read so many of your answers I'm amazed at all the symptoms we have in common but express themselves in various degrees of intensity or just different symptoms. Here are examples of some of mine and possibly related conditions and/or symptoms;
Light, touch, hearing, taste : these don't trigger pain but are very annoying. I prefer dark rooms, wear sunglasses 😎 most of the time. I don't like driving at night due to strong headlights. I wear sunglasses and avoid night driving. I have to leave the room when my husband plays loud music, same with car. Some odors bother me. There is some clothing I can't wear. Hate labels on the back of shirts. Don't like wearing bras. Itching: my scalp and whole body itches on occasion. I usually ascribe these symptoms to the meds I'm on. I take Benadryl and it goes away. Taste: food I've always liked, I cannot eat anymore, I. e. Potatoes.
Memory ? I'm not sure if I forget things bc I'm getting old. I forget to eat breakfast and lunch. My husband and friends laugh and say, how can you forget to eat? To be continued.