How Do You Usually Respond To The Comment "You Don't Look Sick"? | MyFibroTeam

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How Do You Usually Respond To The Comment "You Don't Look Sick"?
A MyFibroTeam Member asked a question 💭
posted March 27, 2017
A MyFibroTeam Member

Not to be disrespectful to all those that have had heart attacks, cancer, diabetes.
But if we got the recognition that these diseases have people would be more aware of fibromyliga being a debilitating disease.
May 12 is not only the time we can educate people about fibromyliga.
I have stickers on my cars a purple ribbon on my car antennas a purple fibromyalgia rubber wristband, purple ink pens.
Anything that I can cause people to notice and I can educate them for a minute about fibromyliga.
Everyone knows that I'm the purple lady and my story why.
Make yourself know.
I have one lady when I walk in her store she will say I can tell your having a bad day.
Some even give me extra help with my shopping so I don't have to walk all over the store.
I live in a small town and don't get out much except to the drugstore and maybe by a design shop I like just to sit and talk sometime when I feel good.
I enjoy talking about interior design and enjoy see what the ladies do even though I can't. They understand if I come in with no makeup, sweatshirt and jeans we just enjoy talking. They understand my fibromyalgia and my need to be with there women that have the same interests.
We don't have scars on the outside that people can see but many on the inside that they can't see.
If all our scars could be seen we would look like a chainsaw had been taken to us.
I can really get on a roll about this.
At the last birthday party I went to for one of my grandchildren.
Three of the men granddaddy's and uncle had all had heart surgery.
They all were saying how good they feel.
There is no way we will be able to say how good we feel.
And carry on a normal life.
Fibromyliga will not kill us but will make us wish we were dead at some time.
I have to end on a good note.
They may have prayed for the day of there surgery.
But we pray every minute to make our next move day and night. God is carrying us every minute of our lives. 💜
Prayers & Blessings To All

posted April 20, 2017
A MyFibroTeam Member

Okay, I know. I am not sick, I HURT there is a difference

posted September 19, 2017
A MyFibroTeam Member

I am sick on the inside where you can't see it but if I could turn myself inside out , you would see a lot of pain & hurt, sometimes like a big ole blister ready to burst

posted May 14, 2017
A MyFibroTeam Member

I say yes it's invisible, some days my face will tell you how I'm feeling. I have said to people go roll sideways down a stony hill and your bruising you end up with is how I feel everyday. Add the flu on top of that and bingo! How I feel every morning.

posted May 6, 2017
A MyFibroTeam Member

Morgan Freeman is making a documentary film about fibro and how it effects different people lives. I think its do out in September but we will have to watch for it.

posted April 20, 2017

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