What Is Fibromyalgia? Your Thoughts And Feelings | MyFibroTeam

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What Is Fibromyalgia? Your Thoughts And Feelings
A MyFibroTeam Member asked a question 💭

What is fibromyalgia other then chronic pain fatigue and other symptoms, GPS say it's not progressive it's part of an autoimmune, but I feel otherwise all I know is I'm getting worse new symptoms are appearing yet when my immune system was checked for lupus my immune system was OK! So why all the infections feeling rundown etc a friend is now suffering from pain with her stomach she's been told the fibro is spreading to her organs, Ive never been told this but I wouldn't dismiss it, I honestly… read more

posted February 5, 2017
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A MyFibroTeam Member

I agree, I feel it is progressive. I have more issues now than when I was first diagnosed.

posted February 5, 2017
A MyFibroTeam Member

Hugs to you all, it's disgusting how were being treated I know as many of you it takes what little you have of way of energy self esteem, how do we help ourselves when the Dr etc ain't suffering Yeah they have there diplomas etc but to me it means shit, they need to suffer how we all do then say we're not helping ourselves, due to other issues exercise is walking or swimming and even short distances make my knees buckle or I'm in bed exhausted, they really don't have a clue and sometimes you have to tell them be ruthless straight to the point but not rude if you get what I'm saying, my viens cnt be canulated I've had a lot but when having bloods done I was told due to the fibro the viens spasm which I found out last time I had bloods it was as though my view locked up with the needle in the back if my hand, a friend of mine has just been diagnosed so I've told her I was gonna post a question and to post something, there's no wrongs or rights Victoria Dickinson so hunni were all here for you xxx

posted February 5, 2017
A MyFibroTeam Member

I don't agree that fibro is not a progressive disease 55 years of doing this and I'm lots worse every year. I've never heard of it affecting tissue or organs.

posted February 5, 2017
A MyFibroTeam Member

I wish I had the answers. I have been stuck in this hell for 15 years. They say it's not progressive yet I have deteriorated same as you. They say it's because I have not done enough to help myself get better and that's bulls hit! The help we need if you are suffering badly is not out there especially in the Uk

posted February 5, 2017
A MyFibroTeam Member

I agree with you...I don't think the Dr's. Really know what they are dealing with. Other than having pain all over my body in my joints etc. I have severe pain in my guts as well! My ribs ache! Behind my ribs it hurts. I get nothing for pain other than gabapenten and mobic and that is a joke for me. It helps none. But yes....my guts do hurt also.

posted February 5, 2017

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