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What Do You Miss

What Do You Miss

What do you miss doing the most that you are now unable to do since you were diagnosed with fibromyalgia?

A MyFibroTeam Member said:

I miss being invited to do things with my friends. I have had to turn down so many invitations that many no longer invite me to come along. Even if I can't go because I'm in pain or don't have the energy, it's still nice to be thought of and feel like I'm missed.

posted almost 4 years ago
A MyFibroTeam Member said:

@A MyFibroTeam Member And that's the thing isn't it... I can still do much of what I used to if I push it but that axe of paying for it in spades later on hangs over everything. I don't think I have it as bad as some here regarding Fibro or associated conditions, either together or alone, but there's some days and then there's others...
From the pov of others it really is an invisible illness. One of my ills/issues alone would be a doozy to get around but the sum of them?... nope.
Still, despite being on a 'disability' benefit I identify as 'chronically, intermittently and often without reason unenabled'... I can do but I can't say when that'll be...

posted almost 4 years ago
A MyFibroTeam Member said:

Like David said in the above comment I miss my old LIFE. I miss being able to spend time baking and making things for others such as birthday cakes or goody boxes at Christmas time. Now I have to start a couple of weeks ahead and use make ahead recipes that I can make first and freeze. There are days I have to ask my partner if he would mind cooking supper. I use to make jewelry as a hobby and that is almost impossible now because my hands shake so bad. I now feel a sense of guilt when my partner wants to be intimate and I hurt so bad I don't want to even be hugged. I not sure if this will make sense to others but there is a grieving process we go through because we have in fact loss a part (wether it be small or large) of who we are because of the fibro and everything that comes with it.

posted almost 4 years ago
A MyFibroTeam Member said:

I miss it all. Daily living like it used to be, just go & do whenever and whatever. I miss headache free days. I miss my energy. But, I'm thankful for each day & not giving up!! Going to keep trying daily for a better life & count my blessings, though it's hard sometimes.

posted almost 4 years ago
A MyFibroTeam Member said:

Planning ..I miss planning with family about an event ....what's the point we never know until we open our eyes that day what we are capable of.....it's like pushing your nose against the window to see what the rest of the world is doing

posted almost 4 years ago
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