What Are Your Performance Levels At Your Best Compared To Pre-Fibro? | MyFibroTeam

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What Are Your Performance Levels At Your Best Compared To Pre-Fibro?
A MyFibroTeam Member asked a question 💭

So... I just had to take a walk into the village to pick up some meds from the chemist. I'm having a reasonably good day painwise and think it's maybe a mile or close to it... the weather is wet but not too cold (yet after that walk I'm starting that deep ache in shins, thighs, buttocks and lower back)

Anyway, I started walking and it was quite a smooth and easy gait... at least outward bound... and as I walked I got to thinking and analysing my own take on the condition. I did the round trip… read more

posted December 10, 2016 (edited)
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A MyFibroTeam Member

Its so strange, this thing called Fibro. Yesterday I was driving downtown, past all the sailboats that are here for Christmas, past all the wonderful restaurants, and the great shopping. It sunk in so deep, that all this was a thing of the past. My life now is so limited, I shop almost for everything I need on the internet. Praise God I can do that. My long walks on the beach are only a remembrance . I don't think I could accept this, if I didn't have the Lord Jesus as my Savior, Lord and Master.

posted December 11, 2016
A MyFibroTeam Member

Thanks to everyone who shared their experience. Reading them got me in touch with our similarities and my present day reality. I, too, am living a different life than in the past...I dread this Philadelphia winter --it is so cold now and I have no real inclination to go out other than when totally necessary. I have recently given away concert tickets twice because I am too tired in the evening...
I am saddened at the throught that my life seems to be moving towards the downside instead of of moving into the golden era where I will enjoy my retirement when it is time...so I have to find a way to make sense of all this: to find hope and realize a new meaning for my life: fine tune my purpose ....and I will,... so stay tuned😂

posted December 11, 2016
A MyFibroTeam Member

omg thats so me too.i had 2 small kids, husband with PTSD, mental illness but i still managed to work, did house work visit friends ect ect busy life, got diagnosed with chronic fatigue, had good days then bad days but i worked through it, that got worse as i got older,i had a few bouts of unable to get out of bed, had to be lifted in/out bed onto toilet ,humiliating at say the least. swore i would never to get like that again, so i did not push myself beyond my abilities ever again. as i got older i analysed my life and illness more ,as i was loosing what i felt like daily my ability to carry on a normal life.i have gotten more and more depressed by the day, as i realise i am in constant pain, so stiff i struggle to wash and dress, i am using a stick more and more, everything i buy and try to do to help me live a constant life seems a waste of time. nothing seems to work, i am constantly sleeping or least in bed unable to sleep this illness is a degrading and waste of life. i self managed my illness for 20 yrs now i am unable to cope without walking aids and medication. i have been ff work 12 wks sick now but i honestly cannot see my be able to work again as this is by far the worse flare up i have ever had even the medication is not helping. i feel for you all as wel are all going through the same crap. hugs to you all . xx

posted December 11, 2016
A MyFibroTeam Member

@A MyFibroTeam Member - I hope you won't mind, but I'm going to stick your words on my wall "I feel good as long as I can get it done !!!!!!!
Thank you ;-)

posted December 11, 2016
A MyFibroTeam Member

Can't even compare. Had so much more stamina before.

posted December 10, 2016

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