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Doctors
A MyFibroTeam Member asked a question ๐Ÿ’ญ

I AM LOST FOR WORDS !!!! the anger I'm feeling at the min is overwhelming ,so here my story started getting symptoms 3years ago 30 doctors later they finale tell me I have fibromyalgia ,great so at least now I know what it is I thought ,my GP didn't know what to do about it so sent my to a '' SPECIALIST '' I waited 1 month for my appointment it took me a hour to get there ,get in the office he ask me a couple of question poked and prodded me, said yes you have it read with booklet take one ofโ€ฆ read more

posted December 5, 2016
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A MyFibroTeam Member

@A MyFibroTeam Member I see your in the UK. Please get onto PALS, or PCS, or whatever it is called at the hospital you went to. They are the patient advice service. Mine is PCS patient customer service, make an off complaint, and make sure you take it to having a meeting with them, including the doctor you saw today. Take your questions written down and say that these are what you wanted answered. I've done this twice at the same hospital, they must hate me, but we can't let them treat us like this. Sending hugs x

posted December 5, 2016
A MyFibroTeam Member

I agree wholeheartedly @A MyFibroTeam Member What we put in our bodies makes a huge difference. Processed, additives, dyes, antibiotics etc are killing us! Trying to stick to a cleaner or whole food way of eating is so beneficial. Also finding out if you have any food allergies is helpful. I was having huge stomach issues...bloating, belching, pain, constipation and finally found out I have allergies to soy, almonds, peanuts, hazelnuts and barley and an intolerance to gluten. So I can eat them but if I do it everyday I really feel a difference. Think of your body as a high performance car that costs $100,000 would you put some crappy low grade water downed gas in it or a high quality one? Think of your body the same way. Try to read labels and start cutting out all the crappy stuff. I think you'll feel a difference.

posted December 7, 2016
A MyFibroTeam Member

Denny, one other thing while looking for a new doctor. Ask the staff when you call. They sometimes are told to say he/she's nice. But you might be better to get a referral. That's not always perfect either. (We were given a rave recommendation for an Opthamologist and the doctor and the staff were a joke). I had a migraine for three weeks.

I really miss my doctors back in CA. Been with with my doctors for two for 20 and two at 25 yrs.
Arthritis 40 yrs
Multiple Sclerosis 29 yrs
Atrial Fibrillation 22 yrs
Fibromyalgia 21yrs
Kidney disease 10 yrs
Etc.

I'm a firm believer attitude is everything. That and a healthy diet and no processed foods.

Keeping a food journal might be helpful. You can look back and see if on days you feel worse it might be something you're eating that makes you worse.

Take care
Hang in there.

posted December 6, 2016
A MyFibroTeam Member

Oh, and recently my Dr told me that she had some good news for me. The test results said that I have osteoarthritis and not rheumatoid arthritis. I asked how that was good news, and she told me that given a choice, most people would choose osteoarthritis. Yay for me.

posted December 6, 2016
A MyFibroTeam Member

Finding a good doctor is really hard. They still treat us like it is all in our heads!! I have found a great rheumatologist and PCP so that has helped. I have been through so much with specialists so I totally understand! Ask people that you know about doctors. That might be the best way to find a good doctor! Good luck. Remember you are in charge and can fire a doctor!! You have to push the issue with these doctors to get your questions answered!!

posted December 6, 2016

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