Never give in or give up
I say the serenity prayer. "God grant me the serenity to accept the things I cannot change,courage to change the things I can, and the wisdom to know the difference
There have been times when I did not move forward. I let the pain and feeling of being alone in my torture keep me isolated and static. And every now and again, I still wallow a little in self-pity because it I need it to renew my desire to not give in to this disease. Yes, I've considered suicide when the pain and lack of support and understanding has been overwhelming, especially the past few years when my job and environment were so toxic that my health crashed lower than ever. But most days, I want to beat it, to win, to get back to me as closely as I can (or even better than I was).
I understand the point @A MyFibroTeam Member made - this isn't the same as terminal cancer or ALS or any other chronic disease that comes with a timeline and an expiration date, so sometimes it feels like we have hope and other times it feels like the torture will never end. That doesn't make it better or worse or harder or easier than those other diseases - and it requires a lot of the same coping mechanisms.
I also understand the point @A MyFibroTeam Member is making. While the symptoms of FM are not deadly, like those of MS or ALS or cancer, we can feel overwhelmed and hopeless. We have to keep moving forward or we stagnate and die. Yes, we should talk about FM, our feelings, our symptoms, our struggles, but just complaining and whining about them won't help us feel better or increase awareness and understanding or help find a cure.
As I've read over everyone's answers to this question, I see a pattern. We are frustrated and angry about our disease and the lack of information and understanding and empathy from those in our lives and our health care teams. We are lonely and confused and hurting and we don't know why or how we got to this point. Some of us are vocal; others are silent; some are looking outward while others look inward - but we all are suffering. And in all of this, we have this place, this site, to vent, to support each other, to spread awareness, to share faith and love and hope. We don't have to have the same faith, or religion, or views, or backgrounds, or politics, or even one language. We just need each other to be here to greet each other, to advise, just to listen to us, and to accept us for who we are.
Thank you all for sharing your opinions, ideas, and yourselves with me as we travel our individual journeys.
When Fear knocked at the door Faith answered and no one was there........Faith keeps me strong
Life isn't about waiting for the storm to pass it's about learning to dance in the rain