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How Do You Get Doctors To Take You Seriously?
A MyFibroTeam Member asked a question 💭

How do you get doctors to take you seriously and not just say things like 'try to get more sleep' 'exercise more' 'just try to pace yourself' 'just take some ibuprofen'? It seems that doctors in the UK don't understand or possibly don't even believe in fibromyalgia especially when you're young (i was diagnosed when i was 19). Even when i was referred to a rheumatologist he just said 'yeah i think you've got fibromyalgia but we don't want to put you on any medication'. It seems to me that unless… read more

posted August 24, 2016
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A MyFibroTeam Member

I'm so sorry @A MyFibroTeam Member. I know your frustration . I live in San Diego California. It took Two years to diagnose me. There are no real tests for Fibro other than by elimination. I had a lot of painful tests.
I was diagnosed 11 years ago. I'm on a lot of medication and Gabipenton is one of them. I find this drug very helpful. You need a pain management doc. Unfortunately General docs don't know a lot about this desease and going to a specialist is the best way to get your meds and understanding..
You need medication for pain, sleep and depression .
I'm sorry you're having such a bad time. We all have had horror stories just trying to get diagnosed.
I'm here for you please contact me anytime. I've studied this horrible disease for 11 years.

posted August 24, 2016
A MyFibroTeam Member

I 1000% know how you feel. It took me almost one year of hoping from one doctor to another, including dentist, only to get the same result you did from your Rhumatologist but mine gave me 1 pill and never contact me or told me anything...i.e, tips on pain management, who to see next, what to do next, etc. I can't even begin to tell you how much bill I have from various doctor visits only to result in "additional to the reasons why you came to see me, you also have x,y,z", thanks Fibro!

My advice, keep pushing, see the pills other people are using here and just ask your Doctor to prescribe it to you or change your doctors. I had already "fired" three doctors and I told my forth the problems I had with the last three. Another thing that works is venting lack of doctor understanding your issues to your Psychologist or Psychiatrist. Receiving a note from either one of these people make "some" doctor see things your way.

Good luck!

posted August 24, 2016
A MyFibroTeam Member

I totally agree with Susan i have been diagnosed some years now, can't remember the number; and experiencing symptoms for almost 20 yrs. I currently go to pain management and take gabapentin, tramadol, sleep meds and other meds am they seem to be working right now. You have support through fibro team. We are here for you~ Peace and Blessings🦋

posted August 21, 2017
A MyFibroTeam Member

There are several books that can help you. My favorite is Fibromyalgia and Chronic Myofascia Pain : A Survival Manual by Devin Starlanyl. It has specific info for doctors, dentists, and body work specialists, as well as a great functional assessment to share with you medical team.

posted August 24, 2016
A MyFibroTeam Member

I live in the UK and am the same. After 3 years of tests and being fobbed off, they finally referred me to a rheumatologist who diagnosed me. He gave me some leaflets on fibro and that's it! The docs put me on 30mg duloxtine and again gave me a leaflet!! It's been 2 years post diagnosis and my health has seriously deteriorated. I'm on 800mg 3 times a day gabapentin and 60mg duloxtine. They have put rightly refused me sleeping meds and just told me to stop sleeping in the day!! Easier said than done but when you have chronic fatigue it's hard not to!! Xx

posted August 24, 2016

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