Just wondering how people plan their time and fit everything in without feeling exhausted all the time , getting up and going to work everyday on little to no sleep. Going out to go shopping, walking, carrying things , cleaning , looking after children or pets etc. Does anyone have any coping methods or ways of planning everything they need to do to prevent causing too much extra pain?
I have a nest, as I call it. My recliner w/ a queen size heating blanket. My books and healthy snacks are on a table next to me. This is where I go most of the day I am at home. I read or watch Netflix or play games on my kindle. This has been very useful after a long day out or maybe not sleeping well. I feel I can be w/ family while getting the rest and heat I need. Before I use to have to lay in bed w a heating blanket, this way I still feel I am part of the family and not being left out.
Had to quit working also. Could not be supermom all the time. I now have a housecleaner, she knows my situation, so she helps w/ the big stuff. She saw my curio cabinets needed cleaning. She told next visit if I take out the stuff she will clean for me. Awesome! I try to do one big thing a day, otherwise I get to overwhelmed. I have been wanting to go to church on Sunday's but it depends on how I feel. I am lucky if I get there once a month. Most weekends I am in my PJ's, preparing myself for the week. I plan my yoga twice a week, bible study twice a week and appts get scheduled on days I am out anyway, so i can have a whole day at home to rest from those days. Anyway, it is a balancing act. Find what works for you so you are not overdoing it. When you have days at home rest. We have been watching movies all day w/ the fire place going. I tell myself it is ok. everything will be there tomorrow. I am allowed to rest.
The main problem is working , if I didnt work I could get everything else done without being too tired and being able to rest when I need to and I'd feel much better. Unfortunately I have to though as there's no benefits you can get for fibro .
I quit working around 2008 due to the fatigue. I am lucky enough to have a wonderful daughter(15), who helps when I ask and my mom who comes over and helps with cleaning. If I can't get something done, it doesn't get done. Taking care of yourself is not selfish, but necessary.
I didn't cope well when working, and lost my job. Now while I have unemployment benefits, I still can handle only so much, so I prioritize and allocate my energy. I go to the gym and try ways to work on my health as top priority. If I have an appointment, I try to rest before and after. I have to limit housework to small amounts each day, so I have a housekeeper come do bigger cleaning every other week. My fiance helps with cooking and cleaning too. Problem is, my unemployment will be up in 2 months, and we need my income to survive. I'm not sure how I can handle going back to work, but I think I'll have to smile through the pain and fake my way through best as I can.