Does Anyone Else Get Zero Support At Home? | MyFibroTeam

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Does Anyone Else Get Zero Support At Home?
A MyFibroTeam Member asked a question 💭

Here comes a rant! I feel like nobody understands how I feel. I get no help ever and attitude when I can't be the person/woman/mother I used to be. I'm so frustrated, you'd think my boyfriend would offer a massage? Nope, I still rub his back though, maybe someone else could offer dinner? Nope, can't do that either. Maybe someone could help load or unload the dish washer? Nope, apparently the lady that can't walk should get attitude because the house isn't clean and the laundry isn't done… read more

posted January 13, 2016
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A MyFibroTeam Member

Yes, I'm in a similar boat. I simply decided one day to put up a wall in my mind and stop listening to the ridiculous complaing, especially when I was wheelchair bound! Tell them the spoon theory if you think it might help, and what you can and cannot do. Put it on the refrigerator. Assign chores and if they're not done they're not your problem. If you can afford cleaning persons to come to your house a couple times a month, do it. If you cannot (like me!), you have let it go, save cleaning projects for your good days, and try to counter their moronic and rude behavior with how you feel when you wake up every morning. How much you love them and would do it if you could!

My psychologist pointed out that when you come home every day to people who don't support you, when they should be your A Team, it creates some of the worst stress and anxiety we can get. Hearing that made me cry, because it's true. So just keep doing what you do, pain warrior, and try to manage their ignorance. Hugs.

posted January 13, 2016
A MyFibroTeam Member

Have you tried asking for help. Another suggestion I would have is to take your significant other with you to your next doctor appointment. Have the doctor explain your condition to him. Might make a difference

posted January 13, 2016
A MyFibroTeam Member

FIBRO is real!!!!! I have suffered with it for years. Not even knowing what it was. My husband thought i was crazy at first. But I couldn't stand to be bumped or touched it would just plain hurt awful. I cried and cried over it. I was sent to a neurologist and diagnosed. I take Cymbalta and a pain med. I also try to eat gluten free as possible. I still have good and BAD days. But get a diagnosis and on something for it. HUGS Hope u feel better soon. And tell ur bf u can only do for u till u feel better..

posted January 14, 2016 (edited)
A MyFibroTeam Member

Nope. I'm in the same boat. I'm overweight and they blame it on that. To boot THEY think why has she not gone back to work. Unfortunately I don't qualify for disability. So I struggle daily with nay sayers

posted January 14, 2016
A MyFibroTeam Member

Sorry you are having a tough time. My oldest daughter (25 yr old) doesn't think there is such thing as Fibro either. She told me one of her Dr.s told her it is something they say when you keep complaining and they don't see anything wrong with you. Also, her friend's Mom is a Nurse and told her the same thing. I was so hurt when she said that to me. She grew up watching me work so hard, and I had endless energy. I could barely sit stil to watch a movie until 3 years ago! My husband thank goodness is very compassionate. I never ask him to do much for me, other than heavy lifting because he is the bread winner and I feel guilty for not being able to work. Our children are grown and living on their own so I only have the two of us to feed, do laundry for etc.. I worry a lot more about cleanliness of the home than he does so if I get behind he probably doesn't notice, or he doesn't say anything anyway. I still do all the cooking and cleaning because I am still able. I also take care of groceries and paying the bills. Other than that I am at rest. I used to feel guilty and still have my moments but am getting better. It is not fun to stay home every day while the world carries on without us. I don't consider it a "treat" to not be working right now. Most people want to feel productive and get a good feeling from going to a job outside the home. Have you sat down with him and told him how hurt you feel from the comments? It is hard for our partners to adjust to our limitations too. Has your partner read any information to understand the pain and fatigue involved with Fibro? It is so important for them to know that we have better days than others and need to listen to our bodies. I don't think many people really get it unless they have it unfortunately. I hope you can find a way to get some support.

posted January 13, 2016

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