I miss being spontaneous as these days every thing has to be planned before hand to make it as manageable as possible. I miss being pain free , I carnt even remember what it is like to be pain free and not constantly aware of my body. I miss running, high heeled shoes, uninterrupted nights sleep, going out with out a container full of pills. Sleeping without a cushion under my knees, working with children. The feeling that the future is bright., being able to keep up with my peers, hell even being able to keep up with my parents in terms of energy and social life. God there's so much I miss 😢

I miss working...I was a math teacher for 17 years...I miss being able to get my kids breakfast in the morning...I miss hugging my husband and kids in the morning...I miss being able to make plans for the weekend...I never know what shape I'm going to be in...so I can never commit to anything...plus I usually pass on social activities with my friends because I'm afraid of causing a flare later on which would affect my activities with my children...I miss sleep...I miss being able to shower then fix my hair...I have temperature issues...I sweat terribly...I have to take little steps for blow drying my hair and fixing it...sweating during sleep means I miss dry sheets and pillows...I miss a lot I guess...I miss my health!!!

I miss feeling well and having no pain. I miss doing the simplest tasks and being able to able to do them. I hurt all the time.

I try to keep doing what I love I try not to give up things but some days when I'm down and in pain I rest and do the things I love when I have a better day! But don't give up! do what makes you, YOU!

I miss not having to think about everything I do or plan for fear that I will get a terrible flare and I miss laughing. Kinda sad when I see it in writing but it's true, I want to feel good and laugh at silly things again. It really takes it's toll on you. But I have my faith and I'm staying positive.