Do any of you get spasms where you can't contol body movements and it feelspainful or itchy when they occur?
Yes especially after a bad flare itchy , times when I can't control jerky motions brain fogs !!!!
My doctor (Neurologist) says nothing so I'm not sure what I'm going to do yet.
Well, I have tried the meds for restless leg syndrome - I have tried Requip at night, but that left me super sleepy during the day. I have also tried Mirapex in the past, but stopped using it because it left me feeling dizzy and nauseous, but I am so desperate that I asked my doctor for it again, but I'm afraid to start using it. While I like my neurologist, I don't think he fully understands when I tell him about my constant moving. It seems like every time I see him (every 4-6 months) he gives me a prescription for hand braces to help with carpal tunnel syndrome. So, this time I kept bringing him back to this movement issue, so he mentioned Mirapex again, so I said fine - I'll try it. I've had the pills for about a week, but I'm afraid to try them and add yet one more medicine to my already huge list of meds. So, I'm still moving all the time at work. What I realized is that when I'm home trying to relax that movement turns into tension in my limbs until I realize I'm tensing and try to relax.
Wish I knew how to fix it - -it tires out my lower extremities
Same here, nothing is comfortable.